Quality of Life and Psychological Well-being in Children and Adolescents with Disorders of Sex Development

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dc.contributor.authorGökşen, Damla
dc.contributor.authorDarcan, Şükran
dc.contributor.authorÖzen, Samim
dc.contributor.authorUlman, İbrahim
dc.contributor.authorÇoğulu, Özgür
dc.contributor.authorÖzbaran, Burcu
dc.contributor.authorPilan, Birsen Şentürk
dc.date.accessioned2023-01-12T20:32:07Z
dc.date.available2023-01-12T20:32:07Z
dc.date.issued2021
dc.departmentN/A/Departmenten_US
dc.description.abstractObjective: The aim of this study was to assess the quality of life (QoL) and psychological well-being in child and adolescent with disorders of sex development (DSD). Methods: Sixty-two cases, aged 2-18 years, who were followed by a multidisciplinary DSD team were included. All participants and their parents were requested the complete the Pediatric Quality Of Life Inventory (PedsQL) and the Strengths and Difficulties Questionnaire. The psychiatric diagnoses of the patients were evaluated according to Schedule for Affective Disorders and Schizophrenia for School-Age Children/Present and Lifetime Turkish Version. Results: There was no significant difference between the 46,XX DSD and 46,XY DSD groups for both child and parent in Total PedsQL score. In the subscale scores, the PedsQL Physical Functionality Score reported by children was significantly lower for the 46,XX DSD group than for the 46,XY DSD group (p=0.01). There was a psychiatric diagnosis in 25.8% of cases. The PedsQL School Functionality Score reported by children in the group with psychiatric diagnosis was significantly lower than the group without psychiatric diagnosis (p=0.018). In the group with psychiatric diagnosis, the PedsQL Total Score and the subscale scores (Emotional Functionality Score, Social Functionality Score, School Functionality) reported by parents were significantly lower than in parents of the group without psychiatric diagnosis. Conclusion: This study emphasized that psychiatric disorders in DSD patients negatively affect the QoL. Psychiatric support and counseling from a multidisciplinary team are very important for families affected by DSD.en_US
dc.identifier.doi10.4274/jcrpe.galenos.2020.2020.0141
dc.identifier.endpage33en_US
dc.identifier.issn1308-5727
dc.identifier.issn1308-5735
dc.identifier.issue1en_US
dc.identifier.startpage23en_US
dc.identifier.trdizinid466489en_US
dc.identifier.urihttps://doi.org/10.4274/jcrpe.galenos.2020.2020.0141
dc.identifier.urihttps://search.trdizin.gov.tr/yayin/detay/466489
dc.identifier.urihttps://hdl.handle.net/11454/81032
dc.identifier.volume13en_US
dc.indekslendigikaynakTR-Dizinen_US
dc.language.isoenen_US
dc.relation.ispartofJournal of Clinical Research in Pediatric Endocrinologyen_US
dc.relation.publicationcategoryMakale - Ulusal Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.titleQuality of Life and Psychological Well-being in Children and Adolescents with Disorders of Sex Developmenten_US
dc.typeArticleen_US

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