Difficulties experienced by caregivers of patients diagnosed with osteogenesisimperfecta (OI): Example of a hospital

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dc.contributor.authorArabaci L.B.
dc.contributor.authorBozkurt S.
dc.contributor.authorVara S.
dc.contributor.authorOzen S.
dc.contributor.authorDarcan S.
dc.contributor.authorSimsek D.G.
dc.date.accessioned2019-10-26T21:22:30Z
dc.date.available2019-10-26T21:22:30Z
dc.date.issued2015
dc.departmentEge Üniversitesien_US
dc.description.abstractObjective: To identify the difficulties experienced by medical caregivers of inpatients diagnosed with osteogenesisimperfecta. Methods: The descriptive, cross-sectional study was conducted at a university hospital in western Turkey from April to May, 2012, and comprised relatives providing care to patients who were diagnosed with osteogenesisimperfecta and were being treated in the paediatric endocrinology unit. Data was collected via face-to-face interviews with patient relatives. The 35-itemquestionnaire had 16 open-ended and 19 close-ended questions. Results: The mean age of the 46 caregivers was 35.52±6.65 years, and 43(93.5%) of them were mothers. All of them said they felt anxious (100%), while 44(95.7%) felt sad/sorrow, 41(89.1%) puzzled, 40(87.0%) nervous, 40(87.0%) frightened, 39(84.8%) disappointed, 29(63%) shocked, and 28(60.9%) depressed when they first heard the diagnosis. Overall, 26(56.5%) experienced physical, 45(97.8%) psychological, 45(97.8%) social, and 35(76.1%) economic changes and difficulties, while 24(52.1%) had no social support. Of all the patient relatives, 38(82.6%) were unable to obtain adequate information about the disorder from the healthcare team. Conclusion: Caregivers of patients diagnosed with osteogenesisimperfecta experienced psychological and social difficulties.. © 2015, Pakistan Medical Association. All rights reserved.en_US
dc.identifier.endpage770en_US
dc.identifier.issn0030-9982
dc.identifier.issue7en_US
dc.identifier.pmid26160088en_US
dc.identifier.scopusqualityQ4en_US
dc.identifier.startpage764en_US
dc.identifier.urihttps://hdl.handle.net/11454/16973
dc.identifier.volume65en_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherPakistan Medical Associationen_US
dc.relation.ispartofJournal of the Pakistan Medical Associationen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectCaregiversen_US
dc.subjectOsteogenesisimperfectaen_US
dc.subjectPatientsen_US
dc.titleDifficulties experienced by caregivers of patients diagnosed with osteogenesisimperfecta (OI): Example of a hospitalen_US
dc.typeArticleen_US

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