Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

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dc.contributor.authorRich, Anna
dc.contributor.authorBaldwin, David
dc.contributor.authorAlfageme, Inmaculada
dc.contributor.authorBeckett, Paul
dc.contributor.authorBerghmans, Thierry
dc.contributor.authorBrincat, Stephen
dc.contributor.authorBurghuber, Otto
dc.contributor.authorCorlateanu, Alexandru
dc.contributor.authorCufer, Tanja
dc.contributor.authorDamhuis, Ronald
dc.contributor.authorDanila, Edvardas
dc.contributor.authorDomagala-Kulawik, Joanna
dc.contributor.authorElia, Stefano
dc.contributor.authorGaga, Mina
dc.contributor.authorGoksel, Tuncay
dc.contributor.authorGrigoriu, Bogdan
dc.contributor.authorHillerdal, Gunnar
dc.contributor.authorHuber, Rudolf Maria
dc.contributor.authorJakobsen, Erik
dc.contributor.authorJonsson, Steinn
dc.contributor.authorJovanovic, Dragana
dc.contributor.authorKavcova, Elena
dc.contributor.authorKonsoulova, Assia
dc.contributor.authorLaisaar, Tanel
dc.contributor.authorMakitaro, Riitta
dc.contributor.authorMehic, Bakir
dc.contributor.authorMilroy, Robert
dc.contributor.authorMoldvay, Judit
dc.contributor.authorMorgan, Ross
dc.contributor.authorNanushi, Milda
dc.contributor.authorPaesmans, Marianne
dc.contributor.authorPutora, Paul Martin
dc.contributor.authorSamarzija, Miroslav
dc.contributor.authorScherpereel, Arnaud
dc.contributor.authorSchlesser, Marc
dc.contributor.authorSculier, Jean-Paul
dc.contributor.authorSkrickova, Jana
dc.contributor.authorSotto-Mayor, Renato
dc.contributor.authorStrand, Trond-Eirik
dc.contributor.authorVan Schil, Paul
dc.contributor.authorBlum, Torsten-Gerriet
dc.date.accessioned2019-10-27T10:00:43Z
dc.date.available2019-10-27T10:00:43Z
dc.date.issued2018
dc.departmentEge Üniversitesien_US
dc.description.abstractBackgroundA minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire.MethodsUsing an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months.ResultsThirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses.ConclusionUsing a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.en_US
dc.identifier.doi10.1186/s12885-018-5009-yen_US
dc.identifier.issn1471-2407
dc.identifier.pmid30458807en_US
dc.identifier.scopusqualityQ1en_US
dc.identifier.urihttps://doi.org/10.1186/s12885-018-5009-y
dc.identifier.urihttps://hdl.handle.net/11454/29751
dc.identifier.volume18en_US
dc.identifier.wosWOS:000450762900002en_US
dc.identifier.wosqualityQ3en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherBmcen_US
dc.relation.ispartofBmc Canceren_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectLung Canceren_US
dc.subjectEpidemiologyen_US
dc.subjectAuditen_US
dc.subjectData collectionen_US
dc.subjectDatasetsen_US
dc.titleAchieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countriesen_US
dc.typeArticleen_US

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