Home care needs of patients with amyotrophic lateral sclerosis and care burden of caregivers

Basit Öğe Kaydı
dc.contributor.authorAlankaya N.
dc.contributor.authorKaradakovan A.
dc.date.accessioned2019-10-26T21:25:23Z
dc.date.available2019-10-26T21:25:23Z
dc.date.issued2015
dc.departmentEge Üniversitesien_US
dc.description.abstractBackground: Amyotrophic Lateral Sclerosis (ALS) is one of the chronic diseases that have an increasing prevalence, and ALS patients are dependent on others and nursed by their relatives at home rather than at a hospital. The aim of this study was to determine the home-care needs and life quality of the patients with amyotrophic lateral sclerosis, the care-burden and quality of life of caregivers, and the efficacy of nursing education given to caregivers in line with their needs. Methodology: Thirty patients and thirty caregivers participated in the study. This study employed a single-group, quasi-experimental, pretest–posttest design with repeated measures. The data of the study were gathered through Daily Living Activities Scale (ADL Scale), Duke Health Profile (DUKE), Caregiver Burden Inventory (CBI), and a demographic data form. The educational needs of caregivers were determined through the use of the cards prepared by the method of card sorting. The relationship between the variables was assessed using Pearson’s correlation coefficient. Diagnostic group differences in variables were assessed using student t-test or one-way analysis of variance (ANOVA) and Post Hoc test. Cluster analysis was done in order to evaluate the questions on the cards. Results: The mean CBI scores of the caregivers participated in the study were found between 60.13 ± 23.93 and 53.23 ± 25.12, and their mean DUKE scale scores were found between 18.07 ± 5.97 and 20.07 ± 4.07. The mean ADL scale scores of the patients and caregivers ranged from 20.13 ± 10.34 to 20.07 ± 4.07. 76.7% of the patients were male, 90.0% of the caregivers were female. Conclusion: It was found that the training given on the subjects of patient care for which a need was felt by caretakers does not decrease the high burden of care. © 2015, Technological Educational Institute of Athens. All rights reserved.en_US
dc.identifier.issn1108-7366
dc.identifier.issn1108-7366en_US
dc.identifier.issue4en_US
dc.identifier.scopusqualityN/Aen_US
dc.identifier.urihttps://hdl.handle.net/11454/17255
dc.identifier.volume9en_US
dc.indekslendigikaynakScopusen_US
dc.language.isoenen_US
dc.publisherTechnological Educational Institute of Athensen_US
dc.relation.ispartofHealth Science Journalen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectAmyotrophic lateral sclerosisen_US
dc.subjectCard sortingen_US
dc.subjectCaregivers burdenen_US
dc.subjectHome careen_US
dc.subjectNursing educationen_US
dc.subjectQuality of lifeen_US
dc.titleHome care needs of patients with amyotrophic lateral sclerosis and care burden of caregiversen_US
dc.typeArticleen_US

Dosyalar

Koleksiyon

Scopus İndeksli Yayınlar Koleksiyonu